Mesothelioma ResearchMesothelioma Research ResourcesIt is very important to learn as much as possible about a disease after the diagnosis is given. Malignant mesothelioma is a rare disease but there are numerous research resources available to those willing and able to do a little digging. It is also important to keep in mind that your doctor is the best and most readily available resource for helping you understand and deal with this disease. This does not prohibit you from doing research on your own via the internet, however, a good doctor values an informed patient who is interested in discussing every possible treatment option. Mesothelioma research done prior to a meeting with your doctor can assist you in your efforts to understand each available treatment and to evaluate which treatment fits with your particular stage in the disease.Along with staying informed by keeping an open dialogue with your doctor and by reading as much as possible by way of the internet, there are resources that can be utilized in your research quest. One of such resources is the American Cancer Society’s (ACS) Cancer Resource Center. The ACS is a non-profit and community-based organization that claims its mission is to eliminate cancer as a major health problem. They are the largest source of private funds for cancer research. The ACS website is a good starting point to begin your investigation. The website provides a fact sheet that describes the link between asbestos and mesothelioma as well as a methods to determine the presence of the disease in your body. Also, another tool to use during your mesothelioma research is the National Cancer Institute, or NCI. They provide a computer service called PDQ that gives up to date information on cancer issues for patients, their families, doctors, and other healthcare professionals. By going to NCI’s CancerNet you can research the PDQ informational summaries on malignant mesothelioma. These summaries are written for both professional and patient readers. You may also read a useful overview specifically designed for mesothelioma research, including treatment and coping options. The NCI also offers an informational and educational service called the Cancer Information Toll-Free Telephone Service. Information is readily available in Spanish as well as in English and it is up-to-date and easy to understand. You may contact this line at 1-800-4-CANCER (422-6237) Monday thru Friday, 9-4:30 whichever time zone you may reside in, the hours remain 9 am until 4:30 pm. Finally, the University of Pennsylvania maintains a web-based resource for mesothelioma research called OncoLink. It provides information about all types of cancer and related topics. The homepage is www.oncolink.com and it has a plethora of information including patient information found under the title- Patient Statement: Malignant Mesothelioma. For a more personal perspective, there is also an article entitled “Thoughts from a Mesothelioma Patient.” All of the information provided here is useful to further your understanding of malignant mesothelioma and to provide support. It will aid you during your mesothelioma research and will provide you with helpful information so you will know exactly what needs to be done.
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